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Huntington's Disease Association of Ireland
Health
- To advocate for a coordinated specialist service for families affected by Huntington’s Disease. Specifically to seek support for a Huntington's Disease out-reach demonstrator project.
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SPINAL MUSCULAR ATROPHY IRELAND FOUNDATION CLG
Health
- Rare diseases and newborn screening of babies
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Irish Platform for Patients' Organisations, Science and Industry
Health
- IPPOSI pre-budget submission 2024
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Marie Keating Foundation
Health
- Invited some public reps to breakfast breifing on cancer at Bloom on May 31st